Jodi’s Going To Africa 2020

What’s Africa 2020?

It started a few weeks ago actually.  I was watching the news, and there was a news story regarding a young lady climbing both the incline and Pike’s Peak with no legs.  You can read about her here.  In a news interview she stated her next goal was to climb Mt. Kilimanjaro.  It peaked my interest, because I can’t really run anymore, I wanted to find new goals to achieve.  So I started searching the internet, and I found this article on a cancer survivor, who climbed Mt. Kilimanjaro with his doctor.  And then I got really interested.  I googled a bunch on Mt. Kilimanjaro, and about what it would take to climb such a mountain.  My dream has always been to go to Africa with my camera, and take pictures of my favorite animals in the wild.  This put a new dimension to my dream of going on an African Photographic Safari (I would never go on a hunting safari, as I do not believe in shooting guns).  I am going to climb Kilimanjaro in 2020.

Why Africa Though? And Why 2020?

I share a lot on social media, but not really a lot.  I always have had some odd connection to Africa.  I don’t even know how to explain it.  The first book I read was, “Born Free.”  I have a vast collection of things made in Kenya, if I see jewelry made in Africa I buy it.  My favorite rides, parks, restaurants, and resorts at Disney World are at the Animal Kingdom.  I love the culture, the food, the people, and the animals in Africa.  And before the Animal Kingdom in Disney opened, I loved the African stores at Busch Gardens in Tampa.  I have wanted to visit the real thing since I was eight.

My favorite animal has always been a lion.  My favorite Disney movie is “The Lion King,” my favorite musical the same.  When I was 21, I had my first, and only, close-encounter with a lion, I got to pet and hold lion cubs in a Mexican Zoo that had not yet opened.  The lion was just like a cat, it snuggled in my arms, and purred.  I will never forget it.  I have always had a hunger to see the Lions in their natural habitat.  I see myself as a Lion has I battle cancer.

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I chose June-July 2020, because this will give me enough time to heal my body, mind, and spirit.  As of right now, my cancer is on the decline.  I am receiving an experimental treatment that has made me feel better than I have in a LONG time.  This will give me the time to train, to do other climbs.  There are 14 peaks in Colorado that are above 14,000 feet.  My intention is to do a few of those before attempting my big climb.

Besides healing my mind, I have a LOT of work to do on my body.  I have been given steroids for most of the last two years.  I gained weight, a lot of weight.  I am trying to get down to a reasonable weight.  I also have start eating healthier and I have to train.  The training alone will help me get down to a fit weight.  I plan on starting to run again, just not marathons.

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I look forward to showing everyone my progress, and pictures as I make my dream of going to Africa, seeing her people, cultures, and animals a reality.

 

The Road Ahead

Hello Friends,

The last six months, have been a full six months.  Full of awesome highs (nearly no evidence of disease, and starting a maintenance drug), and full of valley lows (losing one of my closest new friends to this awful disease).  After Christmas, my blood counts were so low, that I thought I was going to die (literally).  I never have felt so close to death as I did between Christmas and New Years.  I even started to write letters to my children regarding how I wanted to be remembered by them.  I had consistent bloody noses that would take hours to stop up.  I eventually went into the hospital, and got some blood.  I was counting down the infusions until the end of Gemzar and Cisplatin– the beginning of February.

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Mountains Near Breckenridge

In February, my sister-in-law and nephews came out for a visit.  Colorado was not kind to them.  My youngest nephew started throwing up before the trip, and my eldest nephew, who has Type I Diabetes got food poisoning towards the end.  The poor child couldn’t get out of bed.  I was running a fever, had a cough, and felt generally shitty.  I knew since my counts were low, it would take forever to recover from my cold, which ended up being Influenza A (found that out after my son caught it).  After we both got over the flu, we ended up going to Snow Mountain Ranch (YMCA of the Rockies), and rented a nice secluded cabin in the woods.  I still was not up to skiing, and hung out mostly in the lodge.

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YMCA of the Rockies

In March we found ourselves back at Disney World and visiting my mom for Spring Break and Easter.  I did not bring my camera then, but I have a ton of beautiful iPhone pictures of Disney.  When we returned to Colorado it was time to trek up to Denver and see Dr. Corr at UCH Aurora campus.  We found out that my CA-125 had increased to over 600!  Since my symptoms coincided with a possible aneurysm, I was given an emergency CT Scan.  I did end up getting my Avastin infusion (maintenance drug), and the next day found out that my two spots had turned into 5 spots with the largest on my rectum.  On April 7th, I signed the paperwork to start a clinical trial.

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Crestwood Falls at Crestwood State Park

I made several trips to and from Denver to participate in the clinical trial.  I had a CT scan, a brain MRI, a biopsy, and more vials of blood drawn than one could imagine.  By the time I began the trial my CA-125 was over 900.  The clinical trial is a immunotherapy drug called Durvalumab and a vaccine therapy (immune system booster) called IPH2202.  The Durvalumab is supposed to highlight a protein to the immune system in the cancer, and IPH2202 is supposed increase my bodies immune reaction.  So far the side effects are very minimal, and I feel great.

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California Poppies Growing Wild

As of today, I have had two infusions.  I have no increase of cancer symptoms (the symptoms have remained stable– no increase is a very good sign, as I have not had chemotherapy in over 4 months!), I have good energy, and I feel wonderful.  In two days I will be embarking on a photography adventure road trip, and I will be documenting it photographically and on my blog!

We are traveling to the Grand Canyon.  I will be witnessing the a sunrise over the Grand Canyon.  After that, we will be traveling to Las Vegas.  Where I will be photographing the strip, going to the fountain show at the Bellagio, and the pirate show.  I, of course, will play a few games of chance ;).  From there I will be heading on Rt 66 to California.  I have never been on the West Coast.  We will be in Malibu, at Disneyland, visiting an old friend from our time at Vilseck/Rose Barracks, and then trying to see a few stars :D.  Then from LA, we will be driving north along the Pacific Coast Highway to San Francisco (some of the highway is closed, but I’ll see enough of it.  From San Fran, we will travel northward to the Redwood National Forest, where the Ewoks live :).  Finally, we travel back east going through Oregon, Nevada, and Utah to the Arches National Park, and back home.  My goal is to master the manual setting on my camera.

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Purple Wildflowers

Cancer has given me a new appreciation for life.  It is hard to know that one day I will die from this disease and follow the path of my sisters before me.  Life is fleeting…

Rest In Peace:

Jessica Gladstone
Jann Lenhart
Tracey Young
Sue Alvarez
Lori Hamilton
Sarah McGerrtrick
Eileen Albert
Betty Burnell
Leigh Reel English (Liver Cancer)

Song of the Post:  “I’ll Stand By You” Rachel Platten

Losing My Religion

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“That’s me in the corner, That’s me in the spotlight, Losing my Religion…”

Move over Rover, Cancer has taken over…

I’m almost done with my fourth line of treatment (technically my third line of chemotherapy).  This one is doing what every other regimen has done, kept me stable, and kept the cancer at bay.  I should be satisfied, but I am not.  I want it gone.  Since camp I have lost four friends to this insidious disease.  I hate what it has done, not just to me, but to my family.  Things that are certain, are no longer certain.  I think the most disruptive thing it did was cause me to question my religion.

I have always heard that God never gives you more than you can handle.  Then the first uncertain thing happened.  My son was diagnosed with autism when he was two.  I read a blog post, or a poem, called “A Trip To Holland,” so instead of Italy, we are going to Holland, land of Tulips and wooden clogs.  Holland had many adventures– to include adverse affects from immunizations, seizures, child abuse at school, etc…  But there was always God and Jesus to take the burdens.

Then my dad died.  It was unexpected, but expected.  Dad was not very good at taking care of himself.  He believed in miracles.  He made his dreams come true.  He lived in the best place in the world, Disney.  He loved and lived.  He passed away from a heart attack. This put our family into a tailspin.  I stayed with my mom a few weeks, and my daughter stayed there for a little bit longer.  My mom was thrown into widowhood, and I was thrown into a slight depression.  At this time, I started to notice that my back pain from 2014 was returning.  I thought it was from switching from outdoor running to treadmill running in the humid summer.

In October, my daughter started stating that she was going to commit suicide.  She would have tantrums that turned violent.  I was kicked in the face at one point.  She started to put on weight.  It was unreal.  We eventually had to have her hospitalized at nine years old.  We discovered that she had ADHD.  Again, ADHD is something we can handle.

In November and December, I started to feel more and more symptoms.  I felt tired all the time, I would go running, and feel done.  I wrote it off as stress, depression, whatever you can call it.  I also felt a huge amount of guilt.  I was too tired to do my normal routine.  Looking back on the schedule– I got my daughter into counseling appointments, Occupational Therapy, sleep studies, and eating counseling; Ryan needed ABA therapy, OT, ST, and Neurology every three months, which was a drive to Pensacola Beach; and I was seeing a personal therapist and marital counseling.

In January, I went in again to complain about whatever was going on.  I was tired, I was having difficulty breathing, I had a backache.  Something was wrong.  I ended up leaving in tears, after the doctor forgot about my appointment.  I switched to Tricare Standard.  Saw a new doctor.  She ended up suspecting that I had a silent heart attack.  I had an odd heartbeat, and she could hear fluid in my lungs.  I got a lung x-ray.  I had a large pleural effusion in my right lung.  Within two days, I was diagnosed with cancer, stage IV.

Every day since then, I prayed and begged God for my life.  I prayed that He would cure me.  That He would take this burden from me.  I prayed that my children would not be left motherless.  I have seen, and experienced what happens to children when a parent dies.  Even at 40, it is difficult, but kids are 12 and soon-to-be 14.  I can’t take the thoughts what it’s going to be like without me– I know it sounds selfish, but that’s the thought that depresses me the most.  I don’t want to die early.  I want to see the milestones– I want to see my son walk the graduation walk, I want to see my daughter get into her dream college (which right now is “the best college ever” for math and engineering), I want to see my daughter married, I want to meet my grandkids.  I don’t want to be the picture in the corner, or the person that people will tell my kids to get over already (I have heard someone say that to a child of a cancer patient).  I don’t want them to tailspin out of control.  And God is not listening.  He has stolen four friends on this Earth.  And now none of the treatments are working completely, but it is not gone.  I hop from one treatment to another.  I have been abandoned and my children are being abandoned.  How can I believe in someone who is not supposed to give me more than I can handle, when I cannot handle this?  How can I feel that He has this, and the burden is not mine, when it is hurting my family?  So here I am sitting in my corner, in my spotlight, slowly losing my religion…

Oh Deer!

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When we first bought our new home in Colorado, I was so excited about all the wild life that our neighbors talked about.  Of course they were a little less than excited about some of the animals that visit our home.  Particularly, the Mule Deer (a little larger than white tail), that often rub their antlers on the budding trees.  But supposedly, we have a moose cow, a bear, and the deer.

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Last week, I got my 30-something-th chemotherapy infusion, and I was dragging after getting a wonderful injection of neulesta.  I laid down to take a nap, but Thor, my Golden Retriever, decided to bark and bark and bark.  I was irritated, so I yelled at him to STFU.  Yeah, I know my language isn’t the best when I feel like I do post-chemo.

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My daughter said, “Mom, get your camera, there are deer looking in the window.”  Deer looking in the window?!  Why would deer want to look in the window. Sure enough, I looked out my window, and saw the two doe above eating grass in our neighbor’s yard.  I snuck outside, and captured these photos of the beautiful buck that accompanied three doe.

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I’m 90% sure this is lovely 10-point buck that ruined one of our brand new pine trees that we planted earlier this year.  But who knows.  He sure liked to pose.  I got about 2-3 yards away from the herd before he pushed the doe away, and took off across the street.  I did manage to get a few more pictures.

I took a total of 30 pictures…

Some prints are available for sale, and I am making a new 2018 calendar.  My photographs are available for sale at Jodi Vetter Photography, the calendar, and other products will be soon available on a new Etsy Storefront.  A percentage of all sales goes towards Camp Mak-A-Dream outside of Missoula, MT.

I’m Still Here…

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Hello friends, it’s been awhile.  A lot has happened, and I have been busy, but I have not forgotten you.  Where to begin…  I finished up Doxil chemotherapy in May.  I was stable, some of the tumors were even starting to shrink.  But the doctor wanted to save my last eight infusions for another time.  Desperate times call for desperate measures, and we are not quite at desperate measures.

In June, we moved.  We left Florida forever (I will visit, but I will never live there again).  I was regaining my health, and I found my new sanctuary in Colorado.  Florida was beautiful in a tropical way.  There were tropical smelling flowers, calming beaches, and thick forests.  Colorado is beautiful in a mountainous, rugged way.  There is wild life walking through our yard, song birds of every variety, and hummingbirds galore.

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We got settled and used to our new surroundings.  I sat out in the cool evenings and watched the sunsets.  In the mornings, I drank coffee and watched the sunrises.  Then things started to brew.  A few months into moving, I had my first bout of illness.  Easily explained– it was the coffee.  I was not used to drinking coffee, and coffee used to make me sick.  I had a biopsy, too.

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In July and August the storms started.  The illness struck again, but this time it was Kale.  I was trying to change my diet, and it had to be kale.  It was too rough on my digestive track.  The numbers on the scale were starting to creep up, despite me being a little more active.  I decided I was going to hike the Bar Trail next year (13 miles walk, 7000 foot elevation gain).  I had started to even run.  I was accepted into Camp Mak-A-Dream.

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Then in August, the poo hit the fan.  The first week, I was sick, then I had a week where I felt a little better, then the next week I was sick.  I had an appointment with my doctor on the 21st.  The evening of the 20th, I got really, really bad.  I had lost control of my bowels, I lost control of my bladder.  My hands and feet contorted, and I could not move them.  I had soaked a shirt in sweat.  I stripped naked, and sat on the toilet for nearly three hours.  I alternated between vomiting and having diarrhea.  I didn’t know if I should go to the ER, or wait.  Finally, the Zofran, Imodium, and Tylenol took affect, and I was able to put on a Depends, and go to sleep.

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The next day it was confirmed.  My cancer was no longer stable.  It was growing, and producing fluid in my abdomen.  I had gained 20+ pounds over the summer.  I went from a size 10 to a size 14 by the time I saw the doctor.  The fluid is called Ascites (pronounced- A-CEE-TEES).  I was going back on chemo stat.  The new regimen– Gemzar, Cisplatin, and Avastin.  Three days after my first infusion, I checked my weight.  I was down over 15 pounds!

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The side effects weren’t bad.  They were there.  I got my second infusion on Labor Day.  Yes, the nurses in Colorado work on Labor Day.  Nurses are my heroes.  A few days after my second infusion, I left for Montana!  I was a little bit nervous.  There’s forest fires in the area, but I had fun.  I tried a lot of new things– horseback riding (I hadn’t been in over 20 years), archery, photography (next time I’m bringing my “nice” camera), writing, painting, and I could go on and on.  The biggest thing for me is I made life-long friends that I would never imagine I could make.  You see I have difficulty making friends.  But the women I met there “got it.”  The complaints I had about family and friends, who didn’t “get it” were the same.  They understood that since my surgery I tend to fart loudly, that there are certain things I don’t enjoy anymore, and understood the time I wrote ten checks, because I could NOT remember how to write a check (chemo brain is no joke).

 

After four glorious days of forgetting I had cancer, enjoying the company of my new sisters, and just an amazing time.  I came home.  On Tuesday (the 12th), I started to have cold symptoms.  It was just a cough.  On Wednesday, the cough turned into a deeper cough, fever, and dizziness.  I drove myself to University of Colorado Memorial North Hospital late Wednesday.  I was admitted into the cancer-ICU ward (it’s combined).  Several blood tests, infusions, oxygen, and fevers as high 103.6 later, I was diagnosed with influenza a.  I posted on the group Facebook page, and we discovered over 20 women had similar symptoms, six of us with the full blown flu.  I’m the only one still in the hospital.  My platelets are recovering, my white blood cell count just went up.  My bone marrow is non-existent.  I’m on anti-viral medication, anti-biotics (even though I don’t have a bacterial infection, they are keeping me on it because I have no immune system), and some other medications.  I am hoping to go home on Tuesday, but who knows.  My chemo on Monday is cancelled.

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The silver lining, because there is always a bright side, I get to catch up on my blog.  I have edited some photographs, read a novel, done word puzzles, watched football, binge watched USA Networks Movies, and decided that I am going to play with plastic pumpkins and glitter, paint a few of my sunset pictures, do a mountain mosaic, and brainstorm on how to open an online gallery called “Teal Expressions”.  There isn’t much sleep to be had in the hospital though.  But anyway, you’ll be seeing more of me later.

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Teal Expressions is an idea I have been playing with for a long time.  I would like to have an online storefront gallery with women, who are battling (or have battled) ovarian cancer.  It would be an opportunity for artists to earn money, raise money, and express their art.  You can submit anything from visual art (prints, wall art, postcards, greeting cards), wearable art (jewelry, scarves, blankets, shirts), or media art (self published, poetry, self-published prose, produced music).  If anyone is interested in assisting me on creating Teal Expressions, please comment below.  I am in the planning stages right now.

 

 

 

 

 

 

Dogwood Photography Challenge Week 10 and 11: Portrait Environmental and Reflection

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I’m not really that great at portraits, and I’m still kind of behind on my photography challenge, so I’m double stacking my pictures today.  I took this bird a few weeks ago at the Maxwell-Gunther Reserve on the Chocktawatchee Bay in Niceville.  It’s a group of cabins reserved for military personnel and retirees.  Really close to Destin.

If you ever wonder where songbirds go when they fly south for the winter, this is it!  The birds come here.  Often in January and February our area is over-run by birds of all shapes, sizes, and colors.  We don’t have the parrot population that California gets, but we do get a lot of songbirds, loons, ducks, geese, eagle, falcon, and owls.  Anything that migrates from Minnesota, Wisconsin, and the East Coast comes here.

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For week 11, the challenge was reflection.  Last week I went to EPCOT for the Flower and Garden show.  I love taking pictures of anything natural.  It’s my favorite thing to do is walk through gardens and take lots of pictures.  I have a really great submission for week 13, because I got some great macro shots of butterflies.

I have done a LOT of reflection the last few weeks.  Sadly, I lost another friend to cancer.  When you have cancer, you become a survivor, but you also realize that life is not something that you take advantage of.  With losing my father, then making and losing cancer friends, you realize every sing day is a gift from God.  So I have been doing a lot of reflecting, and I think one thing I would like to start is some kind of Art Foundation for cancer patients.  Painting, photography, and mosaics have gotten me through this tough time.  I think it would be great if we (survivors and friends) did things like the 52 week challenge, and then have an on-line store, where the proceeds go to help families dealing with cancer it would be great.  It’s something I’m tossing around in my brain right now.  I would sure like to do something like that.

Well, it’s a beautiful day, the sun is shining, and I plan on taking my camera to the baseball game tonight to get some shots of my kids with their friends.

Dogwood Photography Weekly Challenge Week 8: Panorama

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I skipped week 8.  It has been a hectic week this week.  My husband has been in China, my kids and I had a lot of appointments, and I had chemo today.  Week eight was a panoramic picture.  I went to a local military beach and snapped this picture and merged it in Light Room.

My infusion went well today, though I’m considerably tired.  I did get some really positive news.  My CA-125 reading went down 40 points!  The doctor is going to continue me on Doxil.  I’m still planning on going to next base to talk to the doctors about clinical trials.

Here are some more pictures from the shoreline along the Chochtawatchee Bay in Florida…